#Declare Your Care

People regret not raising concerns about their care – but those who do raise concerns see improvements.

New research has found that almost 7 million people who have used health or social care services, in the last five years, have had concerns about their care but never raised them. Of these, over half (58%) expressed regret about not doing so.

The Care Quality Commission (CQC) is calling for people to speak up about their experiences of care.

The most common reasons for not raising a concern were: 

  • not knowing how (20%) or who (33%) to raise it with 
  • not wanting to be seen as a ‘troublemaker’ (33%)
  • worries about not being taken seriously (28%).
  • over a third of people (37%) felt that nothing would change as a result.

However, when people did raise a concern or complaint, the majority (66%) found their issue was resolved quickly, it helped the service to improve and they were happy with the outcome.

The research is being published today by CQC to mark the launch of their ‘Declare Your Care’ campaign. The campaign is encouraging people to share their experiences of care with CQC to support its work to improve standards of care in England.

The majority of people who did raise a concern or complaint were motivated by a desire to make sure that care improved for others. This included wanting to improve the care they, or a loved one, had received (61%) and improve care for everyone using the service (55%) with a smaller number also hoping for an apology or explanation (26%).

The main reasons given for raising, or wanting to raise a concern, were delays to a service or appointment, lack of information and poor patient care. Additionally, over a fifth indicated that they have raised or wanted to raise concerns about the lack of communication between health and care services.

You can share your experience of care, on behalf of yourself or a family member, at


Declare Your Care infographic


Learning Disability and Autism Training

Have your say on proposals to introduce mandatory learning disability and autism training for health and care staff.

Life expectancy for women with a learning disability is 18 years lower than those without. With a 14 year gap for men.

The government wants to know how it can make sure that health and social care staff have the right training to understand the needs of people with a learning disability and autistic people, and make reasonable adjustments to support them.

The consultation considers issues around the training and development staff need to better support people with a learning disability or autistic people.

You can have your say about proposals on:

  • the planned content of the training
  • how the training should be delivered
  • how to involve people with a learning disability or autistic people in training
  • how we can mandate, monitor and evaluate the impact of training

The consultation will be of particular interest to:

  • people with a learning disability or autistic people
  • the families and carers of people with a learning disability or autistic people
  • patient groups
  • providers of health and social care services

You can find further information, an easy-read guide and respond online at the Department of Health and Social Care website.

This consultation closes at 11.59pm on 12 April 2019.

National survey of people with a learning disability

Mencap is running the first national survey of people with a learning disability in 15 years. This national survey will be a chance for people with a learning disability to tell them about their everyday lives and experiences. 

They will write a report about what they find out. They will use your answers to help make life better for people with a learning disability.